Prelude & Fugue ~
Fear pushes me to keep going
Even though I am tired –
Even though my hands are freezing, stiff
My fear could be a ruse, at war
Over the unpredictable, yet
Possible outcome from
This disease.
Fear is one day I shall sit down
At my piano –
Look at the ivory keys
Sheet music in front of me
And not know what to do.
I fear I’ll look at my piano, knowing
Keys are meant to be pressed, played,
To produce a sound – but,
I fear that won’t happen if
My brain misfires, loses signals
To capable hands, fingers. Or,
I fear my lucid brain will be sharp –
Comprehends the music, ready to
Instruct fingers what to do, yet
Hands are foreign – stiff, frozen, spastic
Useless.
I do not fear the possibility of relying on a cane,
Wheelchair or scooter – or even relinquishing
Car keys- if I can have my piano keys
Just let me sit at my piano and feel it all –
And I’ll play without fear.
MPettigrew 2013
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Author: Mary
ABOUT MARY ~
Mary is a patient advocate for MS, chronic illness & disabilities. She is a freelance writer from Texas who enjoys exploring a variety of different styles & genres, however her deep passion for creative writing (poetry, essay, narrative interview & non-fiction) remains unwavering & purposeful. Mary's personal & professional background is an eclectic compilation consisting of the fine arts, civil rights advocacy, fundraising with 15 years in sales/marketing & event planning in the private club industry. Mary is a 1990 graduate from The University of North Texas with a B.S. in Hotel/Restaurant Management. In 2001, Mary was diagnosed with Multiple Sclerosis. Within a few years, health issues forced her to resign from the career she loved. As her marriage began to crumble, Mary was keenly aware of the emotional & mental crisis firmly taking hold. Eventually, she sought the help of a professional therapist which helped her learn the important coping skills needed to tame/calm mood disorders & to encourage healthy ways in which to purge the noisy chaos inside the brain. This loss of reality, normalcy, & PURPOSE needed to be reinvented, renewed & rewritten...NOW! The divorce & all related proceedings lasted an unfathomable six years, yet it was the therapy, communities & her writing which kept her most grounded. Each poem a cathartic purge, each word a therapeutic tool meant for healing & to inspire resilience. Blindsided by this newfound purpose & passion, Mary continues writing & exploring a plethora of multimedia outlets to this day. Her writing, networking & advocacy projects target the MS, chronic illness & disability communities. Her interactive presence can be seen throughout social media. Although MS is the primary community in which she advocates, Mary enjoys playing an active role in other patient communities (bloggers, writers, music, live chats, special events, & many more. One of the key messages Mary continues to emphasize is how chronic illness can affect everyone differently. MS is a prime example in that we are not a "one size fits all." This disease called MS is a conundrum in every which way. To this day, research continues, yet we still don't know the root cause for MS, yet current findings now show "risk factors" for the disease. MS can morph as it sees fit to do so. Unpredictably, silently, sometimes relentlessly this MS becomes an uninvited, unwanted "internal room-mate." Mary's overall background & her desire to discover herself & new creative outlets was a plus. A renewed student for life, Mary continues to explore the unknown - Once you switch off your "auto pilot" it's amazing what you can see & do. Place focus on learning, consume new information & participate in activities uncharted or foreign (The science of Neuroplasticity). All of this is most DEFINITELY a work in progress, but remember to focus most on the important things in life. Laugh out loud & live selflessly with compassion, purpose & unbridled passion.
Connect with Mary at:
🔸Twitter: @pettigrew66, @MSpals
🔸Facebook: http://www.facebook.com/Mary.patriciapettigrew
🔸LinkedIn: http://www.linkedin.com/in/maryppettigrew
🔸Instagram:
🔸https://www.mspals.wordpress.com
Acknowledgments and Press ~ UPDATES TO COME
* Creator & Co-founder of MSpals: A Global Organization (2014 - present)
* Administrator & contributing author of content, posts, & interviews: MSpals blog:
https:/:www.mspals.wordpress.com
~ The Summer of Sport: Forward Poetry 2012
~ Poetry Rivals Collection 2013
~ Something On Our Minds Vol.III
~ Something On Our Minds Vol IV.
Interviews: National Multiple Sclerosis Society's "Momentum Magazine"
~ 2013 = Art Therapy & MS
~ 2015 = Connecting Via Social Media
Other works also featured on a variety of blogs, websites, videos, as well as other multimedia platforms including:
www.pajamadaze.com
www.disabled-world.com
www.HealthCentral.com
www.MyCounterpane.com
www.MS&MeRadio/TBI Network
iConquerMS/The Accelerated Cure Project
WEGO Health - Patient Leader
HealtheVoices - Patient Leader
MS Focus - Monthly contributor
View all posts by Mary
May fear be replaced with faith. And may grace keep your fingers aflight on the keys always. Many blessings to you, Mary. XXOO
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Many of the feelings expressed here have been on my mind for some time. Thanks for putting this into words. Keep playing. Keep living.
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