Let’s discuss another aspect of fatigue which involves feelings of disappointment & GUILT! Sigh…
Too often I find myself canceling plans. I’m often unable to participate in, or do simple things I intend because fatigue takes over. BOOM! Out of nowhere it appears – There are no excuses, this can’t be helped, yet attempts to rest & recouperate falter as the end result & mindset becomes one of GUILT!
I’m sure I’m not alone in this emotional feeling which results from chronic illness induced fatigue. GUILT!
Why can’t we – why don’t we let go of this waste of emotional energy? How can we let go of this self induced beating? When will we let go of this cycle and realize it’s ok? Sure, it’s a disappointment & often an inconvenient schedule change for all parties involved, but we must remember…it’s ok. When we become “predictably unpredictable” regarding plans with friends & family, remember, it’s ok…they still love us! We have a disease that uses & emphasizes fatigue as it’s invisible bully when we are most vulnerable. Our reality becomes skewed as we unwillingly play the game of “self doubt” & GUILT!
Somebody, please call forfeit!
–Mary Pettigrew 7/2016
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Author: Mary
ABOUT MARY ~
Mary is a patient advocate for MS, chronic illness & disabilities. She is a freelance writer from Texas who enjoys exploring a variety of different styles & genres, however her deep passion for creative writing (poetry, essay, narrative interview & non-fiction) remains unwavering & purposeful. Mary's personal & professional background is an eclectic compilation consisting of the fine arts, civil rights advocacy, fundraising with 15 years in sales/marketing & event planning in the private club industry. Mary is a 1990 graduate from The University of North Texas with a B.S. in Hotel/Restaurant Management. In 2001, Mary was diagnosed with Multiple Sclerosis. Within a few years, health issues forced her to resign from the career she loved. As her marriage began to crumble, Mary was keenly aware of the emotional & mental crisis firmly taking hold. Eventually, she sought the help of a professional therapist which helped her learn the important coping skills needed to tame/calm mood disorders & to encourage healthy ways in which to purge the noisy chaos inside the brain. This loss of reality, normalcy, & PURPOSE needed to be reinvented, renewed & rewritten...NOW! The divorce & all related proceedings lasted an unfathomable six years, yet it was the therapy, communities & her writing which kept her most grounded. Each poem a cathartic purge, each word a therapeutic tool meant for healing & to inspire resilience. Blindsided by this newfound purpose & passion, Mary continues writing & exploring a plethora of multimedia outlets to this day. Her writing, networking & advocacy projects target the MS, chronic illness & disability communities. Her interactive presence can be seen throughout social media. Although MS is the primary community in which she advocates, Mary enjoys playing an active role in other patient communities (bloggers, writers, music, live chats, special events, & many more. One of the key messages Mary continues to emphasize is how chronic illness can affect everyone differently. MS is a prime example in that we are not a "one size fits all." This disease called MS is a conundrum in every which way. To this day, research continues, yet we still don't know the root cause for MS, yet current findings now show "risk factors" for the disease. MS can morph as it sees fit to do so. Unpredictably, silently, sometimes relentlessly this MS becomes an uninvited, unwanted "internal room-mate." Mary's overall background & her desire to discover herself & new creative outlets was a plus. A renewed student for life, Mary continues to explore the unknown - Once you switch off your "auto pilot" it's amazing what you can see & do. Place focus on learning, consume new information & participate in activities uncharted or foreign (The science of Neuroplasticity). All of this is most DEFINITELY a work in progress, but remember to focus most on the important things in life. Laugh out loud & live selflessly with compassion, purpose & unbridled passion.
Connect with Mary at:
🔸Twitter: @pettigrew66, @MSpals
🔸Facebook: http://www.facebook.com/Mary.patriciapettigrew
🔸LinkedIn: http://www.linkedin.com/in/maryppettigrew
🔸Instagram:
🔸https://www.mspals.wordpress.com
Acknowledgments and Press ~ UPDATES TO COME
* Creator & Co-founder of MSpals: A Global Organization (2014 - present)
* Administrator & contributing author of content, posts, & interviews: MSpals blog:
https:/:www.mspals.wordpress.com
~ The Summer of Sport: Forward Poetry 2012
~ Poetry Rivals Collection 2013
~ Something On Our Minds Vol.III
~ Something On Our Minds Vol IV.
Interviews: National Multiple Sclerosis Society's "Momentum Magazine"
~ 2013 = Art Therapy & MS
~ 2015 = Connecting Via Social Media
Other works also featured on a variety of blogs, websites, videos, as well as other multimedia platforms including:
www.pajamadaze.com
www.disabled-world.com
www.HealthCentral.com
www.MyCounterpane.com
www.MS&MeRadio/TBI Network
iConquerMS/The Accelerated Cure Project
WEGO Health - Patient Leader
HealtheVoices - Patient Leader
MS Focus - Monthly contributor
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Reflection & Renewal 